Caregivers play an indispensable role in the recovery of individuals with brain injuries, offering constant support, love, and understanding. While the focus often remains on the person directly affected by the injury, it’s important to remember that the impact extends to their caregivers as well. The emotional, physical, and mental strain can be profound, as caregivers adjust to new roles and navigate the unpredictable nature of brain injury recovery. Their patience, compassion, and resilience often go unnoticed, but they are the backbone of the healing process. This Brain Injury Awareness Month, we shine a light on their essential role and the sacrifices they make to ensure their loved ones receive the care and support they need.
One of the most powerful aspects of caregiving is the personal transformation that occurs over time. We’re honored to share the story of a dedicated caregiver who has been by their loved one’s side for three years, providing unwavering support despite the challenges. Their experience highlights the deep emotional and physical toll of caring for someone with a brain injury, as well as the resilience it takes to navigate the journey. Below, they share their reflections on patience, acceptance, and the love that keeps them going.
My Journey as a Caregiver
June 2025
I have been a caregiver for my wife for 3 years. She was 66 at the time of the car accident. It has been a true eye opener for me, as I had no idea what to expect. First off, my wife presents very well initially. If you chatted with her for 15 minutes you would not know she has a severe brain injury. My wife used to be a very motivated woman. She was very independent and an avid gardener, among many other interests. Now she has no motivation, zero. She has turned off family and friends. She doesn’t answer her phone, and she will not call anyone, she has become a “loner”. Her only motivation now is when her therapist comes, then she will shower and get dressed, however, this is only 3 days a week. The other 4 days its pajamas, and possibly sometimes visiting friends and family, but not often. I feel so sad for my wife. Previously she took care of everything as far as the household goes, now she is not able to run a computer, she doesn’t garden anymore, she won’t even water the house plants. The most important thing I am learning in my journey is patience, first and foremost. Acceptance, that was a huge breakthrough for me. I have so much compassion and empathy for my wife after 53 years, I don’t think I could let her go someplace else. So, I will continue to learn as I go, and take care of her with all my love.
